{"id":17016,"date":"2020-05-20T12:00:22","date_gmt":"2020-05-20T10:00:22","guid":{"rendered":"https:\/\/neurologiaclinica.es\/survey-on-the-impact-of-covid-19-on-families-with-children-with-epilepsy-of-genetic-origin\/"},"modified":"2025-04-17T12:48:00","modified_gmt":"2025-04-17T10:48:00","slug":"survey-on-the-impact-of-covid-19-on-families-with-children-with-epilepsy-of-genetic-origin","status":"publish","type":"post","link":"https:\/\/neurologiaclinica.es\/en\/survey-on-the-impact-of-covid-19-on-families-with-children-with-epilepsy-of-genetic-origin\/","title":{"rendered":"Survey on the impact of Covid-19 on families with children with epilepsy of genetic origin."},"content":{"rendered":"\n

The Epilepsy Program<\/a> of the Neurology Department<\/a> of the Ruber Internacional Hospital in Madrid has published the results of a survey on the impact of Covid-19 on families with children with epilepsies of genetic origin.<\/p>\n\n

The survey was carried out nationwide<\/strong>, with the collaboration of patient associations and other professionals<\/strong>. <\/p>\n\n

The results of this study reveal that confinement and a health care system focused on the care of Covid-19 patients have caused 30% of these children (with epilepsies of genetic origin) to worsen their behavior and 15% have had their epileptic seizures aggravated.<\/strong> <\/p>\n\n

The study was conducted on 277 caregivers of patients with severe epilepsies. <\/h3>\n\n

The epilepsies suffered by these children (genetic epilepsies and developmental encephalopathies) are a heterogeneous group of rare diseases. They suffer from epileptic seizures that are difficult to control with drugs (drug-resistant epilepsies), generally associated with other neurological disorders, such as behavioral disorders or intellectual disability, which makes them especially vulnerable to the circumstances experienced with this epidemic. <\/p>\n\n

51.8% of these patients have not had access to stimulation and rehabilitation therapies. <\/h3>\n\n

Nine of these patients have lost previously acquired abilities related to language or the ability to walk, resulting in neurological regression. <\/p>\n\n

Despite the availability of tools such as telemedicine<\/a>, 62.8% of these patients have not been able to maintain contact with their neurologist. <\/p>\n\n

Those patients who did not have a home with a terrace or garden suffered a greater deterioration, as evidenced by the survey. <\/p>\n\n

Other relevant data: <\/h3>\n\n
  • 9% did not have access to their usual drugs due to shortage of supplies<\/li>
  • 20% did not go to the emergency room due to fear<\/li>
  • The caregivers in charge of these patients have suffered from anxiety (68.6%) and depression (69.7).<\/li><\/ul>\n","protected":false},"excerpt":{"rendered":"

    The Epilepsy Program of the Neurology Department of the Ruber Internacional Hospital in Madrid has published the results of a survey on the impact of Covid-19 on families with children with epilepsies of genetic origin. The survey was carried out nationwide, with the collaboration of patient associations and other professionals. The results of this study […]<\/p>\n","protected":false},"author":1,"featured_media":16230,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[652,570,551],"tags":[739,740,742,653,694,743,641,738,741,665,683,744],"class_list":["post-17016","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-covid-19-en","category-epilepsy","category-news-and-current-events","tag-aledo-en","tag-coronavirus-en","tag-covid-survey","tag-covid19-en","tag-epilepsy-program","tag-genetic-epilepsy","tag-gil-nagel-en","tag-neurologyhri","tag-pandemic","tag-ruber-international","tag-ruber-neurology","tag-sars-co-v-en"],"_links":{"self":[{"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/posts\/17016","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/comments?post=17016"}],"version-history":[{"count":1,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/posts\/17016\/revisions"}],"predecessor-version":[{"id":17017,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/posts\/17016\/revisions\/17017"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/media\/16230"}],"wp:attachment":[{"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/media?parent=17016"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/categories?post=17016"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/neurologiaclinica.es\/en\/wp-json\/wp\/v2\/tags?post=17016"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}