Today we bring you the interview with Dr. Angel Aledoneurologist attached to the Epilepsy Programfor the website https://encefalitisderasmussen.home.blog.
This new website is dedicated to the dissemination of Rasmussen Syndrome, a rare disease characterized by encephalitis (inflammation of the central nervous system), progressive neurological deterioration, epilepsy refractory to treatment (not controlled with medication), and antibodies against R3 glutamate receptors.
We encourage you to visit this website aimed at families living with this disease and to read the interview with our specialist, where he answers questions such as:
- What are your biggest concerns when you give a family member a definitive diagnosis, especially when the patients are children? Is it the neurologist who gives the diagnosis or a neuropsychologist?
- Do you treat any patient with Rasmussen Syndrome and is there a specific hospital/center in Spain to treat this disease?
- What is the current treatment offered to a person with Rasmussen’s?
